Donor lungs not suitable for the fifth time but Cystic Fibrosis campaigner Orla Tinsley remains positive

A pair of donor lungs were deemed unsuitable for Cystic Fibrosis campaigner Orla Tinsley for the fifth time.

The Kildare native took to her social media platforms to share her disappointment but still remains hopeful.

On Instagram she said: "We thought today might have been our day.

"We went through the process and then we heard it was not happening today and we came home.

"I believe in my team who are looking for the perfect match for me, I am grateful for my family, my friends and my support.

Mostly, and deeply, I am grateful for the selfless generosity of the donor and their family and I am sorry for their loss.

We thought today might have been our day. I got a call at 7.15am. We went to the hospital, somehow, just about energized, at 8am. This process is taught so well. It’s clear that the discipline of new lungs requires the discipline to get them in the first place. Waiting for a Transplant teaches how to train and make even more sacrifices in service of the possible miracle. We shot up running again but with even more calm than two days ago and certainly more than ten days ago. We went through the process and then we heard it was not happening today and we came home. I believe in my team who are looking for the perfect match for me, I am grateful for my family, my friends and my support. Mostly, and deeply, I am grateful for the selfless generosity of the donor and their family and I am sorry for their loss. Even though I did not get my Transplant today there is always a back up who needs a single lung and in my experience, more often than not, that miracle happens. Other organs are donated too. Please consider being a donor. You can save up to eight peoples lives. Let your loved ones know your wishes. Too often, through understandable grief and loss, loved ones do not say yes and veto your wishes - even though you have ticked that you have wanted to donate your organs. It starts with a clear, brave, conversation. Your legacy will allow you to live life and then give life. #beatCF #doublelungtransplant✨ #ninjamoves #beadonor LUCKY NUMBER 6. 💓

A post shared by Orla Tinsley⚡️ (@orla_tinsley) on

She urged her 1,500 followers to consider being a donor.

She said: "Please consider being a donor. You can save up to eight peoples lives.

"It starts with a clear, brave, conversation. Your legacy will allow you to live life and then give life."

She also shared the news in a serious of Tweets.

Orla is now holding out for her sixth call.

Last night: Orla Tinsley in hospital as possible donor found for double lung transplant

Cystic fibrosis campaigner Orla Tinsley is tweeting that she is in hospital having received a call that a donor has been found for a possible double lung transplant.

She writes: "I got a fifth call this morning. We are at the hospital now.

"We are thinking of the donor and the generosity that allowed the possibility that my life may be saved today. It is awe inspiring.

"I am thankful for my amazing team and all my support."

Orla, who is from Co Kildare but living in New York, suffered disappointment earlier this week, and earlier this month, when other potential donors were found not to be a match for her.

Today's is her fifth call about a possible transplant.

Just yesterday in an instagram post, she wrote: "Just in case you missed it - the transplant didn’t happen...We are all about call number 5 now...I’m going to use this extra time to get stronger...and give thanks for these lungs that have served me 30 whole years."

Just in case you missed it - the Transplant didn’t happen. Here is a what did happen.. a strawberry shake I had with cheese fries from shake shack last night! They were delicious. We are all about call number 5 now. We’re ready to go pro. I’m going to use this extra time to get stronger after these past IV’s and give thanks for these lungs that have served me 30 whole years. I’m so thankful for my family and friends and my great team who will find the right lungs for me. Thought I need a double lung transplant there are people who only need single lungs so when It doesn’t work out for me often, and in our experience, it works out for others. I find tremendous comfort and elation in that. Everything is in it’s right place for now. Thank you for all your love and support. #beatCF #doublelungtransplant✨#ninjamoves

A post shared by Orla Tinsley⚡️ (@orla_tinsley) on


 

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