Little boy's 'Chocolate Bar' book raises $1 million for rare liver disorder
Dylan Siegel has done something pretty amazing for someone so young.
Back in 2012, inspired by his best friend Jonah Pournazarian, he decided to write a book to help raise funds for research into a rare liver disease that makes sufferers unable to regulate their blood sugar levels. Glycogen storage disease type 1B is incurable and Jonah, 9, is one of only 500 children in the old with the disease.
Dylan, 8, wrote the book himself and started selling it for $20 (€16). Now, thanks to sales in over 60 countries, the book has netted $1 million (€802,325) as of this week.
Every cent from the book has gone to the University of Florida where Dr. David Weinstein leads the research team studying the disease. The money has allowed them to hire a new geneticist, hold new gene-therapy studies and they aim to have a cure within several years.
Weinstein said that when he finds a cure, he wants Dylan right there next to him. And Dylan has said he won't stop raising funds until they do.
